Deshae Lott

determined sojourner

Health care resources

  • Aaron's Tracheostomy Page
        Very comprehensive site providing information about experiences with tubes and dealing with them.
     
  • Cardio-pulmonary therapy
        Describes how to follow this procedure to assist in clearing lungs.
     
  • CMMS Deshae Lott Ministries, Inc.
        Postgraduate scholarships and quality of life grants available.
     
  • Home Tracheostomy Care
        Gives an overview on this subject.
     
  • Information about MiCASSA (Medicaid Community Attendant Services and Supports Act)
        From the ADAPT wesbite; proposed legislation that will increase availability of community- and home-based assistance programs.
     
  • Louisiana Office for Citizens with Developmental Disabilities
          In Louisiana, this office supports people with developmental disabilities in finding solutions for their quality-of-life outside of institutional settings.

  • Reji Mathew, Ph.D.
          With her non-fiction writings Reji Mathew offers readers ways to increase their understanding of coping skills for issues related to health care, disability, medical rehabilitation, mental health, and wellness. Her website and its blog include information on those same topics as well as on expressive arts, health care advocacy, and health resources. Her articles appear in journals, newsletters, or magazines affiliated with a particular health concern; however, the information in the articles can be applied by a much broader audience. 

  • Mission possible: converting to noninvasive ventilation
        Article outlining this strategy; my ventilation is invasive.
     
  • Muscular Dystrophy Association Facts about LGMD
        Overview of limb-girdle muscular dystrophy.
     
  • New Orleans Vent Assistance Program
        In Louisiana, this program offers support to children and young adults (up to age 26) who use ventilators; call (504)869-9228.

  • Nodak Wheeler's Ventilator and Trach Headquarters
        Provides a variety of information on these subjects.
     
  • Sports on Wheels
        Founded by Andy Zadora-Chrzastowski (a vent and wheelchair user with Multiple Sclerosis), this non-profit website     provides digital imaging of and news on disability sport.
  • The Vent Life
        Article discussing aspects of living on mechanical ventilation.
     
  • Tracheostomy and Ventilator Practices
        Provides information to commonly-asked questions about these topics from the point of view of users and professionals.

  • Trach Care
        Gives an overview courtesy of the American Head and Neck Society.

  • Vent Users Support Page
        Reviews issues, lists resources, and other information for vent users.
     
  • VentWorld User's Web Sites
        Links to information about differing aspects about living on ventilation.
     
  • What I Wish I Had Known Prior to Vent-Life
        My thoughts on this subject.